Conference · Philadelphia, Pennsylvania

Rare Disease Collaboration

Health · Medicine

Official website
Next editionNot confirmedLast edition we have: 11–12 Jul 2016
Last venueSonesta Hotel PhiladelphiaPhiladelphia, Pennsylvania
RunningSince 2015Frequency unknown · 2 editions on record
Last checked12 Nov 2026Organiser website checked
We haven't confirmed the next dates yet. The last edition in our records was 11–12 Jul 2016 at Sonesta Hotel Philadelphia. Check the organiser's site: hugedomains.com. Are you the organiser? Correct this listing.

Key numbers

Editions on record
2first in 2015

About Rare Disease Collaboration

With more than 6,000 rare diseases recognized by the NIH, the market for orphan and ultra-orphan indications represents a major growth area for pharma and biotech companies. But low patient numbers combined with the urgency of unmet medical needs can make standard clinical trial procedures unfeasible. ExL Pharma’s 3rd Rare Disease Collaboration Summit gives you the tools you need to build lasting partnerships with patient advocacy groups in order to construct more flexible and patient-centric clinical trial protocols and accelerate the regulatory approval of your orphan drug. This event hosts the formation of working group relationships that harness the collective resources of industry and patient advocates, creating a working framework for shaping legislation and convincing regulators. Build best practice outputs that outlive the meeting!

From our listing of this edition. Details may have changed since.

Editions

YearDatesWhereExhibitorsVisitors
201611–12 Jul 2016Sonesta Hotel Philadelphia
Philadelphia, Pennsylvania
——
201515–16 Jul 2015Hilton Philadelphia at Penn's Landing
Philadelphia, Pennsylvania
——

Past editions from the bvents archive (2008–2019) and organiser figures where they were published.

Questions

When is Rare Disease Collaboration?

The next dates haven't been confirmed. The last edition we have on record was 11–12 Jul 2016.

Where is it held?

The last edition we have was at Sonesta Hotel Philadelphia, Philadelphia, Pennsylvania.

Who organises it?

ExL Pharma.

Industries